When it rains it pours

Butter wrote: »

Keep fighting brother. 1day at a time, 1 moment at a time 💪🤘🙏

Tuff but agreed

Hi Tony ,
Thank's for thinking about me, that's really cool.

So how I'm doing, I'm gonna try to give you the short story but it's been a whirlwind over here.

So During all my tests , my Doctor determined that I have a single Myeloma on my Left rib. I'm still considered Stage 1 cancer.

I had another full blood panel workup and my Proteins that show you have Cancer went up a bit since May. I have not been treated yet for anything, I have been testing for the last 3 months which basically has driven me insane.

My Bone Biopsy and Plasma bone test showed a less than 1% cancer which it should show 10-40%. Another puzzle piece that my doctor said doesn't add up.

He setup a Single Spot Radiation treatment where I get a tattoo where the Rib is infected and treat It and see what happens to the proteins in the blood over time. But the Radiology Doctor looked over my case and decided to call for a MRI and make sure my Spine isn't reporting cancer.

So they sent me for MRI and I went to another campus and I didn't fit in the old MRI machine. The Tech there complained they need a new machine this happens all the time. I wasted 2 1/2 hours of my life, took off from work etc and didnt' get the test done at that time.

So they have another MRI machine that is new and closer to my house, I don't know why they just didn't send me there in the first place so I had to do this all over again and this time I was Able to get it done, Sucked but there you have it.

So the results came back and it should spotting on the spine, not Myeloma yet but could be considered pre myeloma , it's what the condition is before it turns to stage 1. This may never be an issue or over time it is. So both my doctor and the Radiologist Doctor decided I need Estemic Treatment which is much worse then the spot radiation treatment I was gonna get. Now I have to take 2 drugs by mouth and 2 I have to go to the hospital and get injected once a week for 7 weeks.

I won't go into all of that as 2 drugs do the work and the other 2 help me not have as many or any side effects. It was horrible but I gotta do what I gotta do.

So in the meantime , and before I got the bad news of cancer, I have a cracked tooth I have been wanting to get taken care of. With my shoulders and collar bones hurting , I walk around 24/7 in pain. So the my Doctor wanted me to get the tooth taken care of now before we start cancer treatment which I think starts next week.

Today I went to the dentist to get a deep cleaning done which really sucks and hurts and gave me a bad headache, then right after I had the bad tooth pulled and that basically finished me off and I'm really beat up right now. I think if I wasn't dealing with Covid issues, and now cancer issues, the Dentist visit wouldn't have still sucked but not be so life draining as it did. I have been sitting around the house afterwards and I'm really tired worn out and over all these doctors visits.

Again thanks so much for asking and I tried my best to shorten this up, there is a lot more detail that went into the last months .

Tony M wrote: »

What a mentally and physically draining couple of weeks you've had since we last heard about your appointments, test results, and failed MRI test.

It seems you're still in pain going through this.

I had a deep cleaning years ago also. My dentist gave me hydrocodone pills to take before going to my visits. I took one before the deep cleaning and maybe one or two for each day afterwards. The dentist should've given you something before and something to take home too.

The tests you're taking and the results being kind of off would make me crazy too. You're trying to get the overview of your position of severity and the directions to take to get well and they seem to be making it confusing for you.

One step forward and one step back...

I like the one test saying less than 1% cancer but if its wrong, that was a waste of your time and money having them done. The 2 1/2 hour trip for NOTHING AGAIN, good Lord...that had to really make you mad as h*^l.

I gave blood a month ago. I waited for the results in a day or so and what I got was a request to go back and give blood again. WHAT? Yea, somebody let a few of us patients' blood sit out to long and they all solidified. Everybody from that day! I almost refused to go back. The new test was bad for my A1C but I know why and they know too. Chocolate is my feel-good drug for the past 6 years. Pepsi is my drink. I get somewhat active, along with Wellbutrin, drinking iced Pepsi.

What a disappointment knowing there was an MRI machine close to you that you will fit in again.

I'm going to look up Estemic Treatment. I've never heard of it. Sorry they're giving you more debilitating treatment drugs and STILL no offering of would you like to feel better while doing them, medicine.

Thank you for the update. I hope your next one is a lot more uplifting, and you have great results about what's going on inside of you, and one of these docs gives you help with your pain.

I recovered from the deep cleaning pretty fast. Today 2 days later I'm feeling pretty good. Even the Tooth removal I had is not hurting. I'm really happy about that.