Great News Yesterday

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  • drumminman
    drumminman Posts: 3,396
    edited October 2013
    Glad to hear of her progress, even if it's slow. Hospitals have so much infection around, I'm sure the surgeons want her to be home as much as you do. The fact that she's able to eat a little by mouth is a really good sign.

    FYI, TPN = total parenteral nutrition. It means she's getting her calories by special formula through an IV line into a large vein. It's a way to bypass her GI tract so it can heal.
    "Science is suppose to explain observations not dismiss them as impossible" - Norm on AA; 2.3TL's w/sonicaps/mills/jantzen inductors, Gimpod's boards, Lg Solen SDA inductors, RD-0198's, MW's dynamatted, Armaflex speaker gaskets, H-nuts, brass spikes, Cardas CCGR BP's, upgraded IC Cable, Black Hole Damping Sheet strips, interior of cabinets sealed with Loctite Power Grab, AI-1 interface with 1000VA A-L transformer
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  • boston1450
    boston1450 Posts: 7,675
    edited October 2013
    ^^^^ yes i guess LOL.... we thought today they were going to hook them back up. She lost 3 lbs in the last few days even when eating. Doctor decided this morning to keep her till tomorrow. WOW my head is spinning when it comes to which darn day she is coming home. We actually though up till 4pm she was staying longer. She told us she was tired this morning & slept most of day. She ate 6 bites of salad & got sick. (We think her system is still in shock).She said she was afraid to say she felt bad because she wanted to come home. We had a long talk & miraculously she started feeling better & ate at 6pm. So i think it will still happen tomorrow. Her SED ? Infection rate was 40
    it was 46 on the 24th so thats looking good & progressing in the right direction. They should take the PIK LINE out of her arm before she leaves AS they have it capped off now (just in case they kept it in) so 1 more day i travel to Portland i hope :) THANKS for all the kind replys & pm's it really has helped as i see my wife for a short period & i travel there & back EVERY DAY it has been appreciated ....Randy
    ..
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  • scottyboy76
    scottyboy76 Posts: 2,905
    edited October 2013
    Dont think a lack of posts by us is a sign we arent following and praying, a lot.
    humpty dumpty was pushed
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  • Msabot1
    Msabot1 Posts: 2,098
    edited October 2013
    Keep us informed on her progress!!
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  • boston1450
    boston1450 Posts: 7,675
    edited October 2013
    scottyboy76 wrote: »
    Dont think a lack of posts by us is a sign we arent following and praying, a lot.
    No need to Scott got your pm :) She is doing fine they want her at aleast 1200-1500 calories & that hasnt worked out so well. She hates the food so ive bee cooking last night & tonight. They look at her intake & hopefully tomorrow will be a better day. Last night they hooked her up on IV because she stood up & felt faint because lack of nutrients.Shes pissed off because she wants to leave. So crank a$$ too-today. I think tomorrow will be better. I know she will be better feed at home because that food gives me the willy's too.LOL
    ..
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  • cnh
    cnh Posts: 13,284
    edited October 2013
    scottyboy76 wrote: »
    Dont think a lack of posts by us is a sign we arent following and praying, a lot.

    Definitely!

    Hope she feels better and comes home soon! There are at least two things that Hospitals are bad at:
    1. Keeping things sanitary and infection free (some of the worst bacterial infections are contracted through long stays in hospitals (MRSA, for example, tons and tons of it).
    2. Serving edible "food". Haven't seen much of this in this setting.

    Hopefully, getting home will mean less exposure to all the "unclean" surfaces in a hospital, and some good food!

    Wishing for the best!

    cnh
    Currently orbiting Bowie's Blackstar.!

    Polk Lsi-7s, Def Tech 8" sub, HK 3490, HK HD 990 (CDP/DAC), AKG Q701s
    [sig. changed on a monthly basis as I rotate in and out of my stash]
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  • boston1450
    boston1450 Posts: 7,675
    edited October 2013
    Thank you Cnh. Thank you all,for your kind responses. She was discharged tonight & this evening went very well. After reading Bens stuff it makes me relize how greatful i am. Wife & daughter thinks things are going much much beter this time & healing will happen quickly as she usually does. So my fingers are crossed with ease this time. Thanks & im glad she is home..Randy
    ..
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  • Oldfatdogs
    Oldfatdogs Posts: 1,874
    edited October 2013
    Glad she's home Randy, hope she has a speedy recovery.
    Dan
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  • boston1450
    boston1450 Posts: 7,675
    edited October 2013
    Thanks Dan..im hoping this thread will end as with her bein in good health. Shes quite the young lady & a joy to be around. Glad things will be back to the norm too :)
    ..
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  • tonyb
    tonyb Posts: 33,014
    edited October 2013
    Good news Randy....tell her she has all the ice cream she can eat ....on me.

    Doesn't matter what age you are, we need constant reminders that our health is the single most important factor that begs our attention.
    HT SYSTEM-
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  • exalted512
    exalted512 Posts: 10,735
    edited October 2013
    Great news!
    Music is like candy, you have to get rid of the rappers to enjoy it
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  • exalted512
    exalted512 Posts: 10,735
    edited November 2013
    Is everything still going well?
    Music is like candy, you have to get rid of the rappers to enjoy it
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  • boston1450
    boston1450 Posts: 7,675
    edited November 2013
    ^^^ she is doing very well now. Adjusting nicely. Follow ups are going well. Still a tiny little ball of fire :) Thank you for asking.
    ..
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  • steveinaz
    steveinaz Posts: 19,538
    edited November 2013
    That's good news, I'm glad your angel is doing better.
    Source: Bluesound Node 2i - Preamp/DAC: Benchmark DAC2 DX - Amp: Parasound Halo A21 - Speakers: MartinLogan Motion 60XTi - Shop Rig: Yamaha A-S501 Integrated - Shop Spkrs: Elac Debut 2.0 B5.2
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  • exalted512
    exalted512 Posts: 10,735
    edited November 2013
    Amazing news. Glad she's getting better!
    Music is like candy, you have to get rid of the rappers to enjoy it
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  • westmassguy
    westmassguy Posts: 6,850
    edited November 2013
    She's a strong one that's for sure. All the best.
    Home Theater/2 Channel:
    Front: SDA-2ATL forum.polkaudio.com/discussion/143984/my-2as-finally-finished-almost/p1
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  • drumminman
    drumminman Posts: 3,396
    edited November 2013
    Oustanding - glad to hear it!
    "Science is suppose to explain observations not dismiss them as impossible" - Norm on AA; 2.3TL's w/sonicaps/mills/jantzen inductors, Gimpod's boards, Lg Solen SDA inductors, RD-0198's, MW's dynamatted, Armaflex speaker gaskets, H-nuts, brass spikes, Cardas CCGR BP's, upgraded IC Cable, Black Hole Damping Sheet strips, interior of cabinets sealed with Loctite Power Grab, AI-1 interface with 1000VA A-L transformer
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  • Eocuph
    Eocuph Posts: 75
    edited November 2013
    I'm actively reading your posts. Glad to hear that she is doing much better! It's nice to know that their are very caring and involved dads out there. Please continue to keep us posted. Prayers to you, her, and the entire family!
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  • oldrocker
    oldrocker Posts: 2,590
    edited November 2013
    Glad she is betting better, my daughter just got home from work, gave her a big hug, she ask, what up?, I said, just a Dad thing.
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  • Oldfatdogs
    Oldfatdogs Posts: 1,874
    edited November 2013
    Hey Randy,glad your girl is getting better.Maybe now Mom and Dad can relax a little.
    Dan
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  • teekay0007
    teekay0007 Posts: 2,289
    edited November 2013
    Very happy to hear Rebecca is doing better, Randy. I hope she keeps on progressing and you can all get on with life, better than ever, shortly.
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  • boston1450
    boston1450 Posts: 7,675
    edited April 2014
    Just thought id update this thread. We have a appointment on the 28-29-30 at the Boston Children's Hospital in Massachusetts. Stay at hotel. We are thinking of taking the Amtrak down VS driving my truck or my wife's little car down. Last week Rebecca went through a 4 hour test with special kinda food & ex rays. She is maintaining at 90-93lbs & medications she has been put on she is starting to look better. Iron levels way low still. We went on a 40mile HD bike ride (which she loves) the other day. Stopped at a place she likes to eat.. Had a great day with my daughter & wife sent me a text telling me i took the afternoon off work for a good reason :smile:
    ..
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  • Oldfatdogs
    Oldfatdogs Posts: 1,874
    edited April 2014
    That's great Randy,glad shes doing well.

    Dan
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  • scottyboy76
    scottyboy76 Posts: 2,905
    edited April 2014
    Brother, Deb and i had been praying for you all, since the time of her last hospitalization.

    I did not want to pry as far as what her condition was later, as i felt you would post when ready.

    I know normal for her is not as with us, but a 40 mile bike trip with dad, sounds like heaven in anybodys book.

    It not only takes a strong, brave young lady, but a hell of a family to hang through all you have.

    Both myself and deb continue to be with you in spirit, good luck, stay strong, many more great days ahead, im sure.

    God bless,

    scott and Deb
    humpty dumpty was pushed
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  • boston1450
    boston1450 Posts: 7,675
    edited April 2014
    Thanks guys. She was looking not so healthy & we have all we can do to keep her eating to stay going. A few weeks ago she looked very sickly & doctor tried some other medication. Seemed to help her some. Its hard when your children are sick. She still happy as can be though. Never complains
    ..
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  • cnh
    cnh Posts: 13,284
    edited April 2014
    Best wishes, Randy. 90-95 lbs is anorexic unless she's quite petite? I've been wondering about your daughter for a while. That was a complex operation with a LOT of unknown variables. I am reminded of when I can back from China the first time and it took a team of specialists over a year to properly diagnosis my parasitic infestations, and another year to realize that I had IBS and was stressed beyond normal and was somatizing to the extreme. To this day, I am still not 100 percent but probably well over 90 or even 95 percent of what I was before. EXPERTS. I trust them as far as I can toss an Atlas stone.

    The real hope here is that your daughter is very very YOUNG. So in all probability, her body will eventually "normalize" on its own. It might not be in a few months or even in a year, but it will. And when it DOES. The Doctors will, of course, take credit. When they had little to do with it?

    Hang in there, it will all work itself out.

    cnh
    Currently orbiting Bowie's Blackstar.!

    Polk Lsi-7s, Def Tech 8" sub, HK 3490, HK HD 990 (CDP/DAC), AKG Q701s
    [sig. changed on a monthly basis as I rotate in and out of my stash]
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