Our 6 month old has to get a head x ray today...

slammin86
slammin86 Posts: 238
edited July 2011 in The Clubhouse
As some of you may have read from my voting thread, we have 6 month old twins. Since birth Jacob (the oldest one) has had an oddly shaped head (kind of high/broad/and flat in the back). He is also very cranky and fussy all the time and his eyes haven't fully corrected themselves from the baby crosseyed position. Anyway, the doctors have been watching his head and we have made sure to keep rotating it around to try to help.

Well yesterday at the doctor?s appointment when they examined his head the doctor felt that the soft spots might have closed up. She got another doctor to examine his head and they decided to get his head x ray'd today. It is a condition starting with a c that I guess is more common in twin babies. It could be causing his brain not to be able to grow properly.

So today he gets the x ray. Best case scenario the soft spots haven?t closed up all the way and we get him in a custom made helmet right away to help his head correct itself. If the soft spots have closed then they will have to do surgery and cut his skull apart to reshape it.

Sorry to unload on you guys like this, but my wife and I are both very worried right now (as I?m sure any parents would be).

Anyone ever go through anything like this?
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  • Joe08867
    Joe08867 Posts: 3,919
    edited July 2011
    Wow, prayers the little guy is ok.

    Good luck,
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  • steveinaz
    steveinaz Posts: 19,538
    edited July 2011
    We'll be praying for Jacob tonight man. Have faith Dad, he's gonna be alright.
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  • TECHNOKID
    TECHNOKID Posts: 4,298
    edited July 2011
    Prayers sent your way for your son and both of you (the parents). Keep the faith and be strong!
    DARE TO SOAR:
    “Your attitude, almost always determine your altitude in life” ;)
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  • WilliamM2
    WilliamM2 Posts: 4,773
    edited July 2011
    Hate to hear about things like this. Hopefully everything will turn out fine.
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  • PSOVLSK
    PSOVLSK Posts: 5,198
    edited July 2011
    Prayers sent. Hang in there!!
    Things work out best for those who make the best of the way things work out.-John Wooden
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  • stuwee
    stuwee Posts: 1,508
    edited July 2011
    What they said ^^^, I think the condition is from the way the embryo's separated in the womb, the spot they were joined at was probably that region of the skull, was there any ultrasounds to confirm this? Anyway, good thoughts from AZ for little Jacob, my crystal ball says he's gonna be just fine!
    Thorens TD125MKII, SME3009,Shure V15/ Teac V-8000S, Denon DN-790R cass, Teac 3340 RtR decks, Onix CD2...Sumo Electra Plus pre>SAE A1001 amp>Martin Logan Summit's
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  • Jstas
    Jstas Posts: 14,809
    edited July 2011
    I know what condition you are talking about but I can't remember the name either. Years ago, it used to be a pretty bad prognosis. Now, not so much. If they act early, they can correct it with a fairly good success rate. However, any surgery on infants is risky. With that said, I can't say I have experience with it. I know someone who went through it themselves but we parted on bad terms so I can't put you in contact with them. I do know the kid turned out healthy with minimal side effects from the whole ordeal. He and his brother are both 10 years old now and seem to be doing well according to a mutual acquaintance we have.

    I'll keep you and your family in my prayers and hope for the best!
    Expert Moron Extraordinaire

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  • JustinHEMI
    JustinHEMI Posts: 198
    edited July 2011
    My thoughts for you and your family.
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  • mudwrx
    mudwrx Posts: 367
    edited July 2011
    My sister-in-law has twin girls. One of them has a similar head shape you described and they did pay extra attention to it. They discussed the helmet thing but never ended up having to do anything. They are almost 18 months now and you can still see the shape of her head is not what would be considered the normal round shape (although it is not visibly deformed either. You would have to be specifically looking for it I think), but there does not seem to be any ill effects. Both girls are doing very well.

    I will try to find out more details next time I talk to my in-laws.
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  • 20hz
    20hz Posts: 636
    edited July 2011
    I have kids and I prey all the xrays bring you some good news !
    Make sure you let us know on the forumn , many people here care and hope the best for you !
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  • cnh
    cnh Posts: 13,284
    edited July 2011
    Hope all goes well! Also consult with your physicians to make sure the little guy is exposed to as little radiation as possible. I think MRIs might be preferable there, but I'm no expert.

    cnh
    Currently orbiting Bowie's Blackstar.!

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  • DMara
    DMara Posts: 1,434
    edited July 2011
    We definitely keep Jacob in our prayers. Hang in there, he'll be OK :smile:
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  • Big Dawg
    Big Dawg Posts: 2,005
    edited July 2011
    Best wishes for a complete and successful resolution - having to live through stuff affecting our kids is far more difficult than anything else life throws at us. Hang tough and stay optimistic.
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  • muncybob
    muncybob Posts: 3,039
    edited July 2011
    A former co-workers son has something like this and has the helmet. It's all working out for them and I hope it will for you too!
    Yep, my name really is Bob.
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  • brgman
    brgman Posts: 2,859
    edited July 2011
    slammin86 wrote: »
    As some of you may have read from my voting thread, we have 6 month old twins. Since birth Jacob (the oldest one) has had an oddly shaped head (kind of high/broad/and flat in the back). He is also very cranky and fussy all the time and his eyes haven't fully corrected themselves from the baby crosseyed position. Anyway, the doctors have been watching his head and we have made sure to keep rotating it around to try to help.

    Well yesterday at the doctor?s appointment when they examined his head the doctor felt that the soft spots might have closed up. She got another doctor to examine his head and they decided to get his head x ray'd today. It is a condition starting with a c that I guess is more common in twin babies. It could be causing his brain not to be able to grow properly.

    So today he gets the x ray. Best case scenario the soft spots haven?t closed up all the way and we get him in a custom made helmet right away to help his head correct itself. If the soft spots have closed then they will have to do surgery and cut his skull apart to reshape it.

    Sorry to unload on you guys like this, but my wife and I are both very worried right now (as I?m sure any parents would be).

    Anyone ever go through anything like this?



    My prayers to your family man and keep the faith!
    My son was born with a Port Wine Stain that covers most of one side of his face.3 hours after birth they took him for a cat scan and told us he could be brain damaged.
    That came back inconclusive so time would tell.
    We then spent the next month going from "specialist" to "specialist" and they were telling us it was Sturge Weber Syndrome.Another nasty deal for sure.I won't go into details.
    Eventually we ended up at Johns Hopkins in Baltimore where the Doctor scoffed at the previous diagnosis and told us we just need to deal with the birthmark with laser surgery and he would otherwise be fine.We didn't believe him.It sounded too easy after everything we had just gone through.
    We started the laser surgeries the following week.and that SUCKED!! He is now almost 16 and goes every few months for maintenance laser surgeries and he takes it like a man.400+ zaps to the face every time.
    Anyway,He is now an Honor student in a great private High School and is working on his Eagle Scout as we speak.
    My point is...lots of worry and stress and prayers you cannot avoid but all you can do is be there for him and get him the best care you can.
    My son gets stared at all the time and will all his life but with our support he is not lacking in self esteem and now just blows it off instead of letting it eat at him.
    If anything it put my life in a much better perspective as to how fragile life is and it made me a better father than i think i would have ever been if everything was "normal"
    just my 2 cents.
    Stay strong man.
    I know it's not the same but it sure feels like you are feeling what i felt back then.
    May God Bless you and your family.
    (sorry about the long note)
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  • steveinaz
    steveinaz Posts: 19,538
    edited July 2011
    Good for him, and great story man. These things make us who we are. God bless.
    Source: Bluesound Node 2i - Preamp/DAC: Benchmark DAC2 DX - Amp: Parasound Halo A21 - Speakers: MartinLogan Motion 60XTi - Shop Rig: Yamaha A-S501 Integrated - Shop Spkrs: Elac Debut 2.0 B5.2
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  • Oldfatdogs
    Oldfatdogs Posts: 1,874
    edited July 2011
    I hope everything turns out well for your son,good thoughts and prayers sent for you and the family.Stay strong, the wife and kids need to lean on you in hard times. Dan
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  • TECHNOKID
    TECHNOKID Posts: 4,298
    edited July 2011
    brgman wrote: »
    My prayers to your family man and keep the faith!
    My son was born with a Port Wine Stain that covers most of one side of his face.3 hours after birth they took him for a cat scan and told us he could be brain damaged.
    That came back inconclusive so time would tell.
    We then spent the next month going from "specialist" to "specialist" and they were telling us it was Sturge Weber Syndrome.Another nasty deal for sure.I won't go into details.
    Eventually we ended up at Johns Hopkins in Baltimore where the Doctor scoffed at the previous diagnosis and told us we just need to deal with the birthmark with laser surgery and he would otherwise be fine.We didn't believe him.It sounded too easy after everything we had just gone through.
    We started the laser surgeries the following week.and that SUCKED!! He is now almost 16 and goes every few months for maintenance laser surgeries and he takes it like a man.400+ zaps to the face every time.
    Anyway,He is now an Honor student in a great private High School and is working on his Eagle Scout as we speak.
    My point is...lots of worry and stress and prayers you cannot avoid but all you can do is be there for him and get him the best care you can.
    My son gets stared at all the time and will all his life but with our support he is not lacking in self esteem and now just blows it off instead of letting it eat at him.
    If anything it put my life in a much better perspective as to how fragile life is and it made me a better father than i think i would have ever been if everything was "normal"
    just my 2 cents.
    Stay strong man.
    I know it's not the same but it sure feels like you are feeling what i felt back then.
    May God Bless you and your family.
    (sorry about the long note)
    Great post brgman! IMHO, this is the type of testimony slammin86 needs to give him hope and strenght to go through such trials. Good karma on you, God bless!
    DARE TO SOAR:
    “Your attitude, almost always determine your altitude in life” ;)
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  • slammin86
    slammin86 Posts: 238
    edited July 2011
    Well the x ray is done. Now we just have to wait for doctor to call with results. They had a rush on it so hopefully we get the results today.
    Receiver: ONKYO 709
    Amplifier: Acurus A200x3
    Front: EmpTek E55Ti
    Center: EmpTek E56Ci
    Surround: EmpTek E5Bi
    Sub: Elemental Designs A5-350
    TV: LG 55"
    Blu-Ray: PS3
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  • EDUBAG
    EDUBAG Posts: 403
    edited July 2011
    Prayers for you and your family. hopefully it wont be a big deal.

    bless you,

    edubag
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  • TECHNOKID
    TECHNOKID Posts: 4,298
    edited July 2011
    slammin86 wrote: »
    Well the x ray is done. Now we just have to wait for doctor to call with results. They had a rush on it so hopefully we get the results today.
    Praying for you and yours big time right now (and especially Jacob!)!

    God bless Jacob!
    Amen
    DARE TO SOAR:
    “Your attitude, almost always determine your altitude in life” ;)
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  • seeclear
    seeclear Posts: 1,242
    edited July 2011
    I'll be hoping for the best for Jacob. Stay strong.
    "Don't forget to change your politician. They are like diapers they need to be changed regularly, and for the same reason."
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  • woodhead 2
    woodhead 2 Posts: 367
    edited July 2011
    Prayers sent. Hope for the best
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  • xsmi
    xsmi Posts: 1,798
    edited July 2011
    Prayers sent for you and the family!
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  • Ron-P
    Ron-P Posts: 8,516
    edited July 2011
    Sending prayers bro!!!
    If...
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    Ron loves a film = don't even rent.
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  • Sherardp
    Sherardp Posts: 8,038
    edited July 2011
    Prayers & thoughts for the little guy and your family.
    Shoot the jumper.....................BALLIN.............!!!!!

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  • cfrizz
    cfrizz Posts: 13,415
    edited July 2011
    Sending good thoughts your way.
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  • george daniel
    george daniel Posts: 12,096
    edited July 2011
    Good thoughts and prayers sent .
    JC approves....he told me so. (F-1 nut)
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  • potee
    potee Posts: 610
    edited July 2011
    Said a little prayer for the youngster.

    PoTee
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  • apphd
    apphd Posts: 1,514
    edited July 2011
    Prayers for you all. Hope all goes well.
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