Really need some prayers
cstmar01
Posts: 4,424
I try not to post these kind of things but I'm going to loose it.
My not even 1 year old nephew went to the doctors yesterday to find out he has a rare disease that has now caused him to have a hole eaten into his skull bone and has a nice sized hole there.
He is going in for a full body scan to see if it has spread anywhere else and will have to have a chunk of skin removed from his skull to see if they can stop the spread.
If it has he will have to undergo Chemo and there is very low survival rate of people with the disease. If removed it normally comes back in about 6 months to a year and will have the same thing happen.
Please just keep him in your thoughts, I never thought someone so young could have something so terrible..
My not even 1 year old nephew went to the doctors yesterday to find out he has a rare disease that has now caused him to have a hole eaten into his skull bone and has a nice sized hole there.
He is going in for a full body scan to see if it has spread anywhere else and will have to have a chunk of skin removed from his skull to see if they can stop the spread.
If it has he will have to undergo Chemo and there is very low survival rate of people with the disease. If removed it normally comes back in about 6 months to a year and will have the same thing happen.
Please just keep him in your thoughts, I never thought someone so young could have something so terrible..
Post edited by cstmar01 on
Comments
-
White light sent out to you, your nephew and all involved.
-
It sucks when kids get sick like this.Good thoughts and prayers for your nephew and the rest of the family.Dan
-
That is horrible. I hope the little guy comes out on top.Political Correctness'.........defined
"A doctrine fostered by a delusional, illogical minority and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a t-u-r-d by the clean end."
President of Club Polk -
Healing wishes and thoughts to your nephew.Speakers: SDA-1C (most all the goodies)
Preamp: Joule Electra LA-150 MKII SE
Amp: Wright WPA 50-50 EAT KT88s
Analog: Marantz TT-15S1 MBS Glider SL| Wright WPP100C Amperex BB 6er5 and 7316 & WPM-100 SUT
Digital: Mac mini 2.3GHz dual-core i5 8g RAM 1.5 TB HDD Music Server Amarra (memory play) - USB - W4S DAC 2
Cables: Mits S3 IC and Spk cables| PS Audio PCs -
Holy cr@p! Could they not have detected the disease earlier, or would it not have mattered?
Best wishes for the little guy and the entire family.Alea jacta est! -
Godspeed! Prayers for your nephew and family.Source: BRP Panasonic UB9000, CDP Emotiva ERC3 - Display: LG OLED EVO 83 C3 - Pre/Pro: Marantz 8802A - Amplification: Emotiva XPA-DR3, XPA-2 x 2, XPA-6, Speakers, Mains/2ch-Focal Kanta No2's, C-LSiM706, S-702F/X, RS-RTiA9's, WS-RTiA9's, FH-RTiA3's, Subs - Epik Empire x 2
Cables: AudioQuest McKenzie XLR's/CDP/Amp, Carbon 48/BRP, Forest 48/Display, 2 channel speaker cable: Furutech FS Alpha 36 12AWG PCOCC Single Crystal (Douglas Connection)
EXPERIENCE: next to nothing, but I sure enjoy audio and video MY OPINION OF THIS HOBBY: I may not be a smart man, but I know what quicksand is.
When I was young, I was Superman but now that old age has gotten the best of me I'm only Batman -
Sorry to hear that. Good luck!
-
Prayers sent!"....not everything that can be counted counts, and not everything that counts can be counted." William Bruce Cameron, Informal Sociology: A Casual Introduction to Sociological Thinking (1963)
-
Thoughts and prayers for the little one.>
>
>This message has been scanned by the NSA and found to be free of harmful intent.< -
Thoughts and prayers sent your way.Shoot the jumper.....................BALLIN.............!!!!!
Home Theater Pics in the Showcase :cool:
http://www.polkaudio.com/forums/showcase/view.php?userid=73580 -
Thoughts and prayers sent.2 ChannelTurntable - VPI Classic 2/Ortofon 2M BlueAmplification - Rogue Audio Cronus Magnum II, Parks Audio Budgie PhonoSpeakers - GoldenEar Triton 17.2 Home TheaterDenon AVR-X3300W; Rotel RMB-1066; Klipsch RP-280F's, Klipsch RP-450C, Polk FXi3's, Polk RC60i; Dual SVS PB 2000's; BenQ HT2050; Elite Screens 120"Man CaveTurntable - Pro-Ject 2.9 Wood/Grado GoldAmplification - Dared SL2000a, McCormack DNA 0.5 DeluxeCD: Cambridge AudioSpeakers - Wharfedale Linton 85th Anniversary; LSiM 703; SDA 2A
-
Consider them sent to the One, Almighty healer.Remember, when you're running from something, you're running to something...-me
-
He'll be a part of my student's morning prayers.Review Site_ (((AudioPursuit)))
Founder/Publisher Affordable$$Audio 2006-13.
Former Staff Member TONEAudio
2 Ch. System
Amplifiers: Parasound Halo P6 pre, Vista Audio i34, Peachtree amp500, Adcom GFP-565 GFA-535ii, 545ii, 555ii
Digital: SimAudio HAD230 DAC, iMac 20in/Amarra,
Speakers: Paradigm Performa F75, Magnepan .7, Totem Model 1's, ACI Emerald XL, Celestion Si Stands. Totem Dreamcatcher sub
Analog: Technics SL-J2 w/Pickering 3000D, SimAudio LP5.3 phono pre
Cable/Wires: Cardas, AudioArt, Shunyata Venom 3 -
Thoughts and prayers for your nephew.SDA-1C (full mods)
Carver TFM-55
NAD 1130 Pre-amp
Rega Planar 3 TT/Shelter 501 MkII
The Clamp
Revox A77 Mk IV Dolby reel to reel
Thorens TD160/Mission 774 arm/Stanton 881S Shibata
Nakamichi CR7 Cassette Deck
Rotel RCD-855 with modified tube output stage
Cambridge Audio DACmagic Plus
ADC Soundshaper 3 EQ
Ben's IC's
Nitty Gritty 1.5FI RCM -
That really sucks! Thoughts and prayers sent.--Gary--
Onkyo Integra M504, Bottlehead Foreplay III, Denon SACD, Thiel CS2.3, NHT VT-2, VT-3 and Evolution T6, Infinity RSIIIa, SDA1C and a few dozen other speakers around the house I change in and out. -
Sorry to hear. Prayers for your nephew and family.Frank
Polk LSiM 703 mains on Skylan Stands
Polk LSiM 704c center
Polk FX500i surrounds
Parasound 5250 Amp
Oppo BDP-105
SVS PC Ultra tuned to 16hz
Panasonic 65" Viera Plasma -
Unable to find words that fit, except to say we will pray for you all.
We are so sorry to hear, however, these days, medicine advances so quickly, and the young can rebound and heal so quickly from surgery and procedures, well, you never know what hope might be there tomorrow that is not today, heres hoping so.humpty dumpty was pushed -
Prayers sent!2-channelBelles 22A Pre, Emotiva XPA-2 Gen 2, Marantz SA8005, Pro-Ject RPM-10 Turntable, Pro-Ject Phono Box DS3B, Polk Audio Legend L800's, AudioQuest Cable throughout.
-
Definitely praying for him and all that are involved.TV - LG 42" LED
Receiver - Pioneer VSX-521
Front speakers - Polk Monitor 40's Series II
Center - Polk Monitor CS1 Series II
Surround - Polk Audio OWM3
Subwoofer - JBL L8400P
"I was born with music inside me. Music was one of my parts. Like my ribs, my kidneys, my liver, my heart. Like my blood. It was a force already within me when I arrived on the scene. It was a necessity for me-like food or water."
~Ray Charles~ -
Best wishes to your nephew!"Everything I ever did in my life worthwhile I caught hell for"
-
Sending out our prayers to you, him, and the rest of your family during this time of stress and uncertainty! Way way too young to have this kind of thing happen to him:sad:Computer room Hegeman 1 SpeakersM&K VX-80 subKenwood DP-7010Cambridge Audio CXC Transport Rega DACPrimaLuna Prologue Four AmpAric Audio Tube PreampGarage Jennings Research SquareCustom tube preampCrown XLS-1000Denon DCD-1500II Modded MSB Link DAC
-
So sorry to hear about your nephew. Hope he can beat this."Science is suppose to explain observations not dismiss them as impossible" - Norm on AA; 2.3TL's w/sonicaps/mills/jantzen inductors, Gimpod's boards, Lg Solen SDA inductors, RD-0198's, MW's dynamatted, Armaflex speaker gaskets, H-nuts, brass spikes, Cardas CCGR BP's, upgraded IC Cable, Black Hole Damping Sheet strips, interior of cabinets sealed with Loctite Power Grab, AI-1 interface with 1000VA A-L transformer
-
He is in our prayers as well...
If I may ask... what is he suffering from? I have never heard of such a thing...The Gear... Carver "Statement" Mono-blocks, Mcintosh C2300 Arcam AVR20, Oppo UDP-203 4K Blu-ray player, Sony XBR70x850B 4k, Polk Audio Legend L800 with height modules, L400 Center Channel Polk audio AB800 "in-wall" surrounds. Marantz MM7025 stereo amp. Simaudio Moon 680d DSD
“When once a Republic is corrupted, there is no possibility of remedying any of the growing evils but by removing the corruption and restoring its lost principles; every other correction is either useless or a new evil.”— Thomas Jefferson -
Prayers sent and wishing for the little one to heal quickly.
JoeAmplifiers: 1-SAE Mark IV, 4-SAE 2400, 1-SAE 2500, 2-SAE 2600, 1-Buttkicker BKA 1000N w/2-tactile transducers. Sources: Sony BDP CX7000es, Sony CX300/CX400/CX450/CX455, SAE 8000 tuner, Akai 4000D R2R, Technics 1100A TT, Epson 8500UB with Carada 100". Speakers:Polk SDA SRS, 3.1TL, FXi5, FXi3, 2-SVS 20-29, Yamaha, SVS center sub. Power:2-Monster HTS3500, Furman M-8D & RR16 Plus. 2-SAE 4000 X-overs, SAE 5000a noise reduction, MSB Link DAC III, MSB Powerbase, Behringer 2496, Monarchy DIP 24/96. -
Sorry to hear, best wishes for your nephew.Home Theater
Parasound Halo A 31 OnkyoTX-NR838 Sony XBR55X850B 55" 4K RtiA9 Fronts CsiA6 Center RtiA3 Rears FxiA6 Side Surrounds Dual Psw 111's Oppo 105D Signal Ultra Speaker Cables & IC's Signal Magic Power Cable Technics SL Q300 Panamax MR4300 Audioquest Chocolate HDMI Cables Audioquest Forest USB Cable
2 Channel
Adcom 555II Vincent SA-T1 Marantz SA 15S2 Denon DR-M11 Clearaudio Bluemotion SDA 2.3tl's (Z) edition MIT Terminator II Speaker Cables & IC's Adcom 545II Adcom Gtp-450 Marantz CD5004 Technics M245X SDA 2B's, SDA CRS+
Stuff for the Head
JD LABS C5 Headphone Amplifier, Sennheiser HD 598, Polk Audio Buckle, Polk Audio Hinge, Velodyne vPulse, Bose IE2, Sennheiser CX 200 Street II, Sennheiser MX 365
Shower & Off the beaten path Rigs
Polk Audio Boom Swimmer, Polk Audio Urchin -
Prayers for your nephew and his family, and you too. Stay strong.Sal Palooza
-
Thoughts and prayers little buddy.Source: Bluesound Node 2i - Preamp/DAC: Benchmark DAC2 DX - Amp: Parasound Halo A21 - Speakers: MartinLogan Motion 60XTi - Shop Rig: Yamaha A-S501 Integrated - Shop Spkrs: Elac Debut 2.0 B5.2
-
Sorry to read this, sending good thoughts your familys way.Marantz AV-7705 PrePro, Classé 5 channel 200wpc Amp, Oppo 103 BluRay, Rotel RCD-1072 CDP, Sony XBR-49X800E TV, Polk S60 Main Speakers, Polk ES30 Center Channel, Polk S15 Surround Speakers SVS SB12-NSD x2
-
Well the full body scan went well on Saturday. He is going in for pre op today and then will have the skin removed tomorrow and also take a look at the bone and how badly it was eaten.
John I don't remember the name of the disease but will double check when I get home.
Even though there is no where else for now he will have to be monitored for the rest of his life as it normally comes back 6-12 months later in a different part of the body. Just have to hope he has a longer remission period than that. -
I'm a firm believer in prayer and I'm standing in prayer with you now. Thanks for sharing. Peace and love.