Ten years with MS and I'm as healthy as before

candyliquor35m
candyliquor35m Posts: 2,267
edited August 2008 in The Clubhouse
This month is my 10 year anniversary of being diagnosed with ms. I have many of the common symptoms: numbness and burning in my feet and having to insert a catheter in my "say what" about 10-20 times a day to drain my bladder.

My symptoms do not seem to be getting any worse and that really didn't happen the first 9 years so I consider myself in remission. I haven't needed any iv steroids (solu-medrol) for close to 2 years now. My energy level is good and I'm gaining a little weight.

PM me if you want to know what I did to improve my health and facilitate this long-term remission.

Feel free to post your personal experience with ms or those of your friends, family, co-workers, etc.
Post edited by candyliquor35m on
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  • schwarcw
    schwarcw Posts: 7,335
    edited August 2008
    Carl,

    I have no personal experience with this terrible disease. I just want to wish you luck in battling MS. I hope that you can continue to stay strong. Good luck!
    Carl

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  • hearingimpared
    hearingimpared Posts: 21,137
    edited August 2008
    What he said.
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    Thanks guys.
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    Keiko wrote: »
    I don't wish you any ill will CL, regardless of the other issues. Best wishes as you battle with this terrible disease.

    thank you sir.

    No matter what crazy (curse word bleeped out :D) things you've said to me in the past and may continue to say, I still respect you as a person. Whether you deserve it is not for me to judge.
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  • daboyz
    daboyz Posts: 5,207
    edited August 2008
    Very happy for you that you are doing so well. Good luck in the future.
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  • TroyD
    TroyD Posts: 13,077
    edited August 2008
    Congrats and hope things continue to go well on that front.

    Now, if you'd consider seeing a shrink so you could possibly stop being such an a$$hole....
    No matter what crazy (curse word bleeped out ) things you've said to me in the past and may continue to say, I still respect you as a person. Whether you deserve it is not for me to judge.

    Case in point, wtf? You are clearly fishing for compliments here, a guy gives you one and you still have to act like a jagoff.

    BDT
    I plan for the future. - F1Nut
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  • brettw22
    brettw22 Posts: 7,624
    edited August 2008
    Any word on the mental illnesses being fixed? Just askin.......
    comment comment comment comment. bitchy.
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  • Systems
    Systems Posts: 14,873
    edited August 2008
    Good to hear its not progressing.I recently was tested for it(MRI)as I had some of the symtoms,thankfully the test showed it was'nt MS.
    Testing
    Testing
    Testing
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    TroyD wrote: »
    Congrats

    Thanks but no thanks. This isn't a debate thread.

    Have a good day. I know I am :D
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  • NotaSuv
    NotaSuv Posts: 3,845
    edited August 2008
    I wouldn't be surprised if this whole thread was BS for more attention
    sad very very sad
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  • DollarDave
    DollarDave Posts: 2,575
    edited August 2008
    NotaSuv wrote: »
    I wouldn't be surprised if this whole thread was BS for more attention
    sad very very sad

    Carl does have MS. Wether or not it has been 10 years, I can't vouch for.

    His mental-well being is questionable, I will agree with that. He seems to have turned into the type of person that drives slow in the fast lane in order to antagonize others. To prove a warped point that somehow he is dealing with daily problems differently (read better) than other people. Even his "Have a nice day. I know I am." with the stupid smiley is posted in order to antagonize people. Unfortunately it works and is allowed to continue. Carl, please see, or continue to see, a qualified theapist.

    Sorry for the derail, but I wanted to vouch for Carl on the MS question, and then encourage him to get help with the other.
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  • bobman1235
    bobman1235 Posts: 10,822
    edited August 2008
    I predict an LOL with a "have a nice day" in your future.
    If you will it, dude, it is no dream.
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  • NotaSuv
    NotaSuv Posts: 3,845
    edited August 2008
    thanks David
    its so sad to watch someone cry out for attention
    especially on the net......can only imagine the number of AE's he has out there...
    more than likely posting to one another

    will need to research the effect it has on ones mentals health
    it really might not be his fault at all......hhhhhhhhhmmmmmmmmmm
    he might not even have a clue ;)

    well CL heres to havin a great day....alarm clock went off and I woke up

    doesnt get any better than that..........
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  • DollarDave
    DollarDave Posts: 2,575
    edited August 2008
    bobman1235 wrote: »
    I predict an LOL with a "have a nice day" in your future.

    I know. And, an incomplete quote of my post to show everyone that he doesn't care what I (or any other poster) said because what we post is not as important as his reply.
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  • AsSiMiLaTeD
    AsSiMiLaTeD Posts: 11,725
    edited August 2008
    OK, who put the wambulance tag in there - friggin classic!
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  • NotaSuv
    NotaSuv Posts: 3,845
    edited August 2008
    "If you have MS and feel very sad or have no interest in things around you, you need to seek help."


    WOW a direct relationship to a decline in mental health.....hhhhhhhhhhmmmmmm
    a little reading bout this really opened my eyes.......
    yes the slow driving on purpose in the fast lane......a cry out for attention...
    those silly posts...a cry for attention....
    poor guy just needs a lil attention........

    Well at least his posts make more sense to me now

    I will sleep much better at night

    heres hoping you have or are seeking help............

    have a great day filled with ATTENTION for you
    I will do my best to help you with your attention addiction
    together we will get the monkey off your back
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    Thanks but no thanks.

    This is not a debate thread.

    Have a good day. I know I am :D
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  • brettw22
    brettw22 Posts: 7,624
    edited August 2008
    I might just be so much of a dick in that I could care less about his health problems because of what a jerkoff he is.......c'est la vie......
    comment comment comment comment. bitchy.
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  • dudeinaroom
    dudeinaroom Posts: 3,609
    edited August 2008
    Good to hear CandyLiquor. My wife was diagnosed about 4 1/2 years ago with the same, She has had one flare-up and has been doing well ever since. She has some slight loss of sensation on her left side, but other than that she is doing well so far.
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  • Ricardo
    Ricardo Posts: 10,636
    edited August 2008
    Did I hear karma?
    _________________________________________________
    ***\\\\\........................... My Audio Journey ............................./////***

    2008 & 2010 Football Pool WINNER
    SOPA
    Thank God for different opinions. Imagine the world if we all wanted the same woman
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  • NotaSuv
    NotaSuv Posts: 3,845
    edited August 2008
    candyliquor35m wrote: »
    Thanks but no thanks.

    This is not a debate thread.

    Have a good day. I know I am :D


    No debates just plain ole facts...............
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    dudeinaroom wrote: »
    Good to hear CandyLiquor. My wife was diagnosed about 4 1/2 years ago with the same, She has had one flare-up and has been doing well ever since. She has some slight loss of sensation on her left side, but other than that she is doing well so far.

    That's good. Are they giving her any iv steroids (solu-medrol) and copaxone?

    Let me know if you want to know what I've done.

    carl
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  • brettw22
    brettw22 Posts: 7,624
    edited August 2008
    This is not a medical advice forum. Surely you don't need to be told again, right?

    Quit putting medical advice out there moron........
    comment comment comment comment. bitchy.
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  • engtaz
    engtaz Posts: 7,663
    edited August 2008
    Couple of true friends have this and I do not wish it on anyone. The good thing for my friends, is it was gradual and the were able to adapt to new limitations. Sorry to here about you condition.

    Take care,
    engtaz
    engtaz

    I love how music can brighten up a bad day.
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    engtaz wrote: »
    Couple of true friends have this and I do not wish it on anyone. The good thing for my friends, is it was gradual and the were able to adapt to new limitations. Sorry to here about you condition.

    Take care,
    engtaz

    thanks
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  • dudeinaroom
    dudeinaroom Posts: 3,609
    edited August 2008
    candyliquor35m wrote: »
    That's good. Are they giving her any iv steroids (solu-medrol) and copaxone?

    Let me know if you want to know what I've done.

    carl

    She has Not started Steroids yet. We planned on having more kids, so she decided to wait. We have had our 3rd and final child, and she is planning on starting treatment after our little one is done breast feeding. Nice thing for women is, as long as they are pregnant MS subsides, some thing about the hormones in their bodies. She also stays active which helps a lot. One of my friends also has MS, years ago she started low impact aerobics, and it has helped her a lot.

    Later,
    dude
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  • Joe08867
    Joe08867 Posts: 3,919
    edited August 2008
    Glad you have been holding steady Candy.

    And Dude, I hope your wife continues to have good health and congrats on child # 3.
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  • candyliquor35m
    candyliquor35m Posts: 2,267
    edited August 2008
    Joe08867 wrote: »
    Glad you have been holding steady Candy.

    And Dude, I hope your wife continues to have good health and congrats on child # 3.

    thanks. I would rather have ms than many other things like als, or lupus, or even asthma.
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  • bobman1235
    bobman1235 Posts: 10,822
    edited August 2008
    Asthma!

    Yeah, I'd much rather have a degenerative brain disease than an easily treatable and common respiratory problem.
    If you will it, dude, it is no dream.
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  • mrbigbluelight
    mrbigbluelight Posts: 9,677
    edited August 2008
    candyliquor35m wrote: »
    thanks. I would rather have ms than many other things like als, or lupus, or even asthma.

    While I might agree with the ALS and Lupus, to say you'd rather have MS than asthma is ....... not very well informed.
    Sal Palooza
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